He was only a child when it begun
And he played as children do
In his yard with his toy cars and tip trucks
But his sand was asbestos blue…
In December 1999, my husband and I were walking home from a game of
lawn bowls when I became aware of his shortness of breath. I was
surprised and concerned when he told me that he had experienced this on
several occasions. Believing this to be due to chest a infection, I
made a doctor’s appointment for him the next day.
Chest X-rays revealed fluid on the lungs, over two litres of which was
drained, giving Brian immediate relief, but it was a tense wait for the
pathology results. Through the Internet I had become aware of several
conditions which may have been responsible for fluid on the lung; these
included asbestos- related diseases. Brian had lived in Wittenoom as a
child and I was afraid of his diagnosis. Not wanting to worry him
unnecessarily, I did not mention my fears to him. I prayed that he had
pleurisy or pneumonia but the pathology results revealed that there
were cancer cells present.
When Brian finally received his diagnosis, my worst nightmare became
reality. He had pleural mesothelioma, a terminal cancer of the lung
caused by the inhalation of asbestos dust. We found it inconceivable
that the disease was the result of Brian inhaling asbestos dust as a
child and that it had lain dormant for forty-five years before become
lethal.
We were still reeling from the shock when, without preamble, the young
doctor gave his prognosis. His exact words were, “Three to nine months,
I reckon”. That he could say this so unfeelingly amazed me. His total
lack of compassion did not encourage even the small comfort of tears. I
felt as if Brian and I had been shot and from that moment on we were
waiting to drop.
Undoubtedly, were mortally wounded. We suffered shock, disbelief,
anger, helplessness and utter despair; in fact all the symptoms of
grief one feels when a loved one has actually died. Suddenly, we had no
control over our lives, our journey through terminal illness had begun.
Throughout the course of our married life my deep love for Brian and my
determination to resolve difficulties had seen us through many trials.
I found it hard to believe that nothing could be done to save his life
and begun surfing the Internet for information regarding mesothelioma,
all the time praying for a miracle, hoping against hope to find a
doctor who had successfully operated on or cured someone of it.
It was a sad realization to discover that for Brian there were no
miracles; however, I learned a lot and it helped me to accept that he
was dying. With my acceptance came a fierce determination to ease his
burden. I continued to seek information regarding mesothelioma and the
pain and symptoms Brian would experience, due to the progression of his
disease. In this way, I came to understand the importance of pain
management and symptom control and realized that although I could not
stop Brian from dying – I could help him to live.
My acquired knowledge regarding pain and symptom management enabled me
to communicate with Brian and to understand the type of pain he was
experiencing and the intensity of that pain. I was then able to work
hand in hand with his doctors, to bring his pain and symptoms under
control. As my efforts resulted in his improved quality of life, I lost
my sense of helplessness and gained strength.
Together, we achieved for Brian, a quality of life few thought
possible, considering the nature of his disease. Testament to this,
despite his prognosis of three to nine months, Brian survived for 2
years, remained active and alert, drove his car for eighteen months
after diagnosis and was not bed bound until three short days prior to
his death.
Brian's courageous battle with mesothelioma came to an end on the 24th
December 2001; he passed away at home surrounded by his loved ones. He
was 54 years old.
Lorraine Kember is the Author of "Lean on Me - Cancer through a Carer's Eyes" www.cancerthroughacarerseyes.jkwh.com A powerfully moving and inspirational true story about her husband's
courageous battle with mesothelioma and her emotional journey as she
cares for him. This touching book includes helpful information on
topics such as: cancer pain management, symptom control, and coping
with grief. Diary excerpts and poems Lorraine penned along the way are
interspersed throughout this book and further depict the depth of their
love for each other, the sense of helplessness she experienced on his
diagnosis, and her growing strength as she comes to realize that there
is much she can do to improve the quality of his life. This book has
been highly recommended by the Cancer Council, as well as numerous
other organizations and doctors. To read more about this book or order
it online, please visit the link above.