When
I went from a cane to a four wheel walker ~with a seat ~ people's
stress levels dropped dramaticly. I fell down a lot less too. My
handicapped, motorized scooter had long since been dispensed with when
I had left real estate and had decided I wouldn’t need it. Now, I have
another. Now, I have a hard time getting out of the wheelchair onto it.
So, is this what is meant by "Progressive?"
When, a couple of years ago, I wrote an article about my dread disease,
I still had not fully comprehended how disabling Perminant Progressive
MS can become. I had come to realize that my denial had delayed
acceptance of the diagnosis, my fear had stampeded me to stupid
decisions, and had found ~ by writing a novel ~ I could dispel
depression. Yet, I could still walk, a little, and figured I would
bounce back soon.
Reality catches up with most of us ~ sooner or later. Not that it is
easy to accept. Although the ‘Docs’ said I had already passed from
relapsing remitting MS ~ to Perminant Progressive MS ~ I thought I’d
make a rather rapid comeback. Little did I know that I would become
even more dependent upon another who deserved less defiance from one
she had committed to share life with.
When I went from a cane to a four wheel walker ~with a seat ~ her
stress level dropped dramaticly. I fell down a lot less too. My
handicapped, motorized scooter had long since been dispensed with when
I had left real estate and had decided I wouldn’t need it. Now, I have
another. Now, I have a hard time getting out of the wheelchair onto it.
Perminant Progressive MS (Multiple Sclerosis) it’s called.
“Progressive” has surely taken on more meaning ~as I can no longer walk
~ even with the walker. Accepting life in a wheelchair is a tough one.
So is accepting the fact that keeping honeybees for BVT (Bee Venom
Therapy) is not a realistic option for those of us that must now reside
in apartments. “Perminant” is still not a diagnosis or concept that I
am willing to accept.
Maybe, admitting to myself that I needed to use disposable briefs was
the most major challenge? My caregiver’s sensitivity to provide a
sightly container ~ rather than stack my diapers in a conspicious place
(like on the back of the toilet) ~ has made my right decision less
embarrassing. Her rapid removal of soiled disposables helps too.
Like most of us MSers, I continue to seek the “Silver Bullet,” that
non-traditional cure that conventional medicine ~ which says there is
none ~ doesn’t embrace. Okay, I have tried a few. Although some other
MS victims have experienced significant improvements from these, Silver
water, LDN, and various supplements, they haven’t worked for me. There
are many weapons in the arsenal that I have yet to try.
Perhaps, my best weapon is faith? As Hebrews 11:1 says, “Faith is the
substance of things hoped for, the evidence of things not yet seen,” I
continue to keep on hoping I am led to the answer of renewed health for
myself. I also believe that I am where a very good God wants me to be ~
for His reasons.
If you have found my article because there is something in it you were
supposed to see, I am delighted to have been of some small service. You
might want to visit the website I am learning to build and attempt to
maintain http://MilesBooks.com where other information awaits you.
To those of you who are affected by others with Multiple Sclerosis, I
ask that you be patient with him or her. Pray for us. Hope we become
more sensitive to how our compromised conditions impacts others ~ and
that we make internal adjustments which will will be reflected in our
outward actions.
For those who have Perminant Progressive MS, expect challenges. Accept
~ without resentment ~ the helps and aids which are made available.
Become less of a problem for those who attempt to help you.
Russ Miles is author of the novel, For Sale By Owners:FSBO. A “Seasoned
Real Estate NAR® Broker,” disabled by Multiple Sclerosis, Russ writes
books & articles on varied subjects.
FOR SALE BY OWNERS:FSBO ISBN 0-595-28703-4,in trade paperback, is
available by phone or Internet:1-800-Authors to order direct! Adobe
e-book & hard cover editions also available at Amazon.com at Barnes
and Noble and other fine booksellers.
Comments: MilesRuss@Gmail.com. Please visit Russ Miles's website MilesBooks.com for other informative features and information of interest.